In Your Control Patient Advocacy

Important Note

I personally research and curate all the external resources shared here to ensure they’re credible and patient-centered. However, this website and its content are provided for general information and support only. I’m not a medical professional, and this material is not medical advice. Always consult a qualified healthcare provider before making changes to your care plan. If you’re in crisis or need urgent help, please call your local emergency number.

I plan to update these resources periodically to keep information current and helpful.

Welcome

This hub collects treatment & clinical trial resources, support networks, and practical tools designed to help you manage chronic conditions and navigate the health system. Use the quick links below and reach out to community groups for lived-experience support.

If You Need Help Now

If you’re in crisis or need immediate support, reach out to one of these trusted services:

• 988 Suicide & Crisis Lifeline (U.S.) — Call or text 988 anytime for 24/7 emotional support.
• Crisis Text Line — Text HELLO to 741741 for free, confidential support.
• SAMHSA Helpline — 1-800-662-HELP (4357) for mental health or substance use support.

Navigating Care & Practical Help

• Understanding Your Health Insurance
  Plain-language guide: coverage basics, appeals, and common terms explained.
• Patient Rights & Privacy (HIPAA)
  Federal rights on medical privacy and access to your health records.
• Financial Assistance & Benefits
  Links to programs that can help with medication costs and disability benefits.

Treatment & Clinical Trials

If you’re exploring treatment options or interested in participating in research, the resources below are reputable starting points. Always discuss options with your care team before joining any trial or starting new therapies.

• ClinicalTrials.gov
  U.S. National Library of Medicine — searchable database of active and completed trials worldwide.
• CenterWatch
  Patient-friendly trial listings and drug development news.
• NIH Health Information
  National Institutes of Health resources on treatments and research.

Support & Advocacy Networks

Peer support and advocacy organizations can provide practical help, community, and policy-level advocacy for patients and caregivers.

• Global Healthy Living Foundation
  Community programs and chronic illness advocacy.
• NORD — National Organization for Rare Disorders
  Support and resources for rare disease patients and families.
• Arthritis Foundation
  Programs and support for people living with arthritis.
• American Diabetes Association
  Education, community programs, and research for diabetes care.
• Lupus Foundation of America
  Resources and advocacy for lupus awareness and research.
• Multiple Sclerosis Foundation
  Support, education, and assistance for people with MS.
• American Cancer Society
  Information, community programs, and cancer research initiatives.

Help with Prescription Costs

These programs may help reduce out-of-pocket medication expenses for eligible patients. Always verify details with your healthcare provider or pharmacist.

• NeedyMeds
  Free database of patient assistance programs, coupons, and diagnosis-based resources.
• GoodRx
  Find local pharmacy price comparisons and printable coupons.
• Partnership for Prescription Assistance
  Helps patients without insurance access free or low-cost medications.

Last Updated: October 15, 2025